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Psychosocial adjustment in newly diagnosed prostate cancer

- Love, Anthony, Scealy, Marita, Bloch, Sidney, Duchesne, Gillian, Couper, Jeremy, MacVean, Michelle, Costello, Anthony, Kissane, David

  • Authors: Love, Anthony , Scealy, Marita , Bloch, Sidney , Duchesne, Gillian , Couper, Jeremy , MacVean, Michelle , Costello, Anthony , Kissane, David
  • Date: 2008
  • Type: Text , Journal article
  • Relation: Australian and New Zealand Journal of Psychiatry Vol. 42, no. 5 (2008), p. 423-429
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  • Description: Objective: To examine the psychological and social adjustment of men with early or advanced stage prostate cancer and to compare them with a matched group of cancer-free community volunteers. Methods: A longitudinal observational study in which 367 men recently diagnosed with early (n =211) or advanced stage (n = 156), prostate cancer were compared to 169 cancer-free men from the community, of similar age and residential area, using self-report measures of psychosocial adjustment. Results: On the mental health subscales of the Short-Form 36-item Health Survey, men with advanced disease had lower vitality and social functioning than the other two groups, and lower mental health scores than the comparison group. Both patient groups had lower role-emotional scores than the comparison group. With regard to the Brief Symptom Inventory, the advanced disease group had higher somatization scores, and lower interpersonal sensitivity and paranoid ideation scores than the early stage group and the community comparison group. In terms of psychiatric morbidity, there were higher rates of anxiety disorders but not depressive disorders in both patient groups although overall diagnosis rates were low. No differences were found in terms of couple or family functioning. Conclusions: There is impairment in psychosocial function in men with prostate cancer, particularly those with advanced disease, but no increase in the rate of formal psychiatric disorder or adverse effects on the couples and families. This suggests directions for psychosocial interventions with these patient groups

Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear)

- Smith, Allan, Bamgboje-Ayodele, Adeola, Butow, Phyllis, Klein, Britt, Turner, Jane, Sharpe, Louise, Fardell, Joanna, Beatty, Lisa, Pearce, Alison, Thewes, Belinda, Beith, Jane, Girgis, Afaf, iConquerFear Community Advisory, Group

  • Authors: Smith, Allan , Bamgboje-Ayodele, Adeola , Butow, Phyllis , Klein, Britt , Turner, Jane , Sharpe, Louise , Fardell, Joanna , Beatty, Lisa , Pearce, Alison , Thewes, Belinda , Beith, Jane , Girgis, Afaf , iConquerFear Community Advisory, Group
  • Date: 2019
  • Type: Text , Journal article
  • Relation: Psycho-Oncology Vol. , no. (2019), p.
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  • Description: Objective: To develop and evaluate the usability of iConquerFear, an online self-management adaptation of an efficacious face-to-face therapist-delivered treatment for fear of cancer recurrence (FCR). Methods: iConquerFear development was theory based and person based. Development was guided by Ritterband et al's behaviour change model for internet interventions. iConquerFear end users (cancer survivors) provided iterative feedback in accordance with Yardley et al's person-based approach to maximise engagement and usability. Online focus groups and cognitive interviews were conducted to evaluate the usability of iConquerFear. Discussions were recorded, transcribed verbatim, and thematically analysed. Results: Five online FCR modules were developed. Twenty-three cancer survivors (47% of those eligible) participated; 11/23 (58%) were breast cancer survivors, and average age was 53 years (SD = 10.8). Thematic saturation was reached after six focus groups (n = 16) and seven individual think-aloud interviews. Thematic analysis produced five overarching themes: easy navigation essential; satisfaction and engagement with content; flexible access is key; normalising and empowering; and a useful first step. Conclusions: Online self-management interventions like iConquerFear have the potential to address the unmet supportive care needs reported by burgeoning numbers of cancer survivors. However, that potential may not be realised unless interventions are rigorously developed and user tested, as benefits are constrained by limited engagement. Themes from the usability testing of iConquerFear highlight the importance of developing flexible, tailored, interactive, and contextual online self-management interventions for people with cancer. © 2019 John Wiley & Sons, Ltd.

Feasibility and preliminary efficacy of iConquerFear: a self-guided digital intervention for fear of cancer recurrence

- Smith, Allan, Bamgboje‐Ayodele, Adeola, Jegathees, Sharuja, Butow, Phyllis, Klein, Britt, Salter, Marj, Turner, Jane, Fardell, Joanne, Thewes, Belinda, Sharpe, Louise, Beatty, Lisa, Pearce, Alison, Beith, Jane, Costa, Daniel, Rincones, Orlando, Wu, Verena, Garden, Frances, Kiely, Belinda, Lim, Karen, Morstyn, Lisa, Hanley, Brigid, Hodgkin, Rosemerry, Beattie, Annette, Girgis, Afaf

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