The impact of fatigue on daily activity in people with chronic kidney disease
- Bonner, Ann, Wellard, Sally, Caltabiano, Marie
- Authors: Bonner, Ann , Wellard, Sally , Caltabiano, Marie
- Date: 2010
- Type: Text , Journal article
- Relation: Journal of Clinical Nursing Vol. 19, no. 21-22 (2010), p. 3006-3015
- Full Text: false
- Reviewed:
- Description: Aims and objectives: To examine the impact of fatigue on the daily activity levels of people with chronic kidney disease, compare whether being predialysis or receiving different renal replacement therapies had any effect on fatigue and activity and identify whether any items in the fatigue severity scale were more predictive of daily activity levels. Background: Chronic kidney disease is a complex and long-term disease where people commonly experience fatigue and reduced levels of fitness; both of which impact on an individual's ability to carry out routine activities of daily life. Design: A descriptive cross-sectional design. Methods: A convenience sample of 112 people completed the fatigue severity scale and Human Activity Profile. Participants differed in their renal history and were either predialysis or receiving renal replacement therapy. Results: Women or older participants were significantly more fatigued and less active than men or younger participants. A significant difference between mean fatigue and activity scores was found for type of renal replacement therapy, with participants receiving peritoneal dialysis being the most fatigued and the least active. Additionally, lower levels of albumin were significantly correlated with greater levels of fatigue and the ability to engage in fewer activities. Conclusion: People with chronic kidney disease regardless of whether they are predialysis or receiving either peritoneal or haemodialysis experience high levels of fatigue and are able to engage in fewer daily activities. The fatigue severity scale and the Human Activity Profile are useful indicators of fatigue and physical activities which can be used in routine assessment practices. Relevance to clinical practice: Renal nurses are ideally positioned to engage in early identification and regular monitoring of both fatigue and activity levels in people with chronic kidney disease. Individual care plans can be developed to incorporate supportive rehabilitative strategies which aim to reduce fatigue and maximise activity levels.
- Description: 2003008244
- De Silva, Daswin, Burstein, Frada, Stranieri, Andrew, Williams, Katrina, Rinehart, Nicole
- Authors: De Silva, Daswin , Burstein, Frada , Stranieri, Andrew , Williams, Katrina , Rinehart, Nicole
- Date: 2013
- Type: Text , Conference paper
- Relation: Information systems: Transforming the future 24th Australasian Conference on Information p. 2-11
- Full Text: false
- Reviewed:
Characteristics of mothers with chronically ill children in Jeddah, Saudi Arabia
- Katooa, Nouf, Shahwan-Akl, Lina, Reece, John, Jones, Linda
- Authors: Katooa, Nouf , Shahwan-Akl, Lina , Reece, John , Jones, Linda
- Date: 2015
- Type: Text , Journal article
- Relation: International Journal of Nursing Vol. 2, no. 1 (2015), p. 59-73
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- Reviewed:
- Description: Children are their parents’ pride and joy. Parents have hopes, dreams and expectations for their children to grow and develop in a holistic healthy manner physically, emotionally, and socially. It is an extremely vulnerable situation when the life and health of children are threatened; hence, when a child is diagnosed with a chronic condition, parents grieve for the loss of their child’s health, their expectations and dreams can be challenged, and their sense of protection, feeling of invulnerability are severely shaken. Objectives: This study focuses on Saudi parents and in particular the mothers who have children with chronic illnesses. It aimed to describe and explore the coping patterns of Saudi mothers who have chronically ill children. Method: A survey questionnaire was administered to 122 Saudi parents with chronically ill children in peadiatric wards at three public hospitals in the Jeddah region in Saudi Arabia. Demographic data, Quality of Life Scale (QOL), The General Self-efficacy scale (GSE) and Social Support Questionnaire (SSQ) were distributed to the Saudi parents with identified chronically ill children. Results: The results of the descriptive statistical analyses provided significant correlations between QOL score and GSE, between QOL and SSQ, between QOL and stress and adversity, between GES and SSQ, between stress and adversity and duration of child’s illness, and between stress and adversity and family time spent in caring activities. In addition, a nearly significant result was found between GES and stress and adversity. Conclusion: The results of the study emphasise the importance of a thorough and holistic assessment of families, their social environments and the level of support they require to assist them to cope with the chronic illness of their children.
- Authors: Katooa, Nouf , Shahwan-Akl, Lina , Reece, John , Jones, Linda
- Date: 2015
- Type: Text , Journal article
- Relation: International Journal of Nursing Vol. 2, no. 1 (2015), p. 59-73
- Full Text:
- Reviewed:
- Description: Children are their parents’ pride and joy. Parents have hopes, dreams and expectations for their children to grow and develop in a holistic healthy manner physically, emotionally, and socially. It is an extremely vulnerable situation when the life and health of children are threatened; hence, when a child is diagnosed with a chronic condition, parents grieve for the loss of their child’s health, their expectations and dreams can be challenged, and their sense of protection, feeling of invulnerability are severely shaken. Objectives: This study focuses on Saudi parents and in particular the mothers who have children with chronic illnesses. It aimed to describe and explore the coping patterns of Saudi mothers who have chronically ill children. Method: A survey questionnaire was administered to 122 Saudi parents with chronically ill children in peadiatric wards at three public hospitals in the Jeddah region in Saudi Arabia. Demographic data, Quality of Life Scale (QOL), The General Self-efficacy scale (GSE) and Social Support Questionnaire (SSQ) were distributed to the Saudi parents with identified chronically ill children. Results: The results of the descriptive statistical analyses provided significant correlations between QOL score and GSE, between QOL and SSQ, between QOL and stress and adversity, between GES and SSQ, between stress and adversity and duration of child’s illness, and between stress and adversity and family time spent in caring activities. In addition, a nearly significant result was found between GES and stress and adversity. Conclusion: The results of the study emphasise the importance of a thorough and holistic assessment of families, their social environments and the level of support they require to assist them to cope with the chronic illness of their children.
The perceived effects of COVID-19 while living with a chronic illness
- Ryder, Mary, Guerin, Suzanne, Forde, Rita, Lowe, Grainne, Jaarsma, Tiny, O'Neill, Madeline, Halley, Carmel, Connolly, Michael
- Authors: Ryder, Mary , Guerin, Suzanne , Forde, Rita , Lowe, Grainne , Jaarsma, Tiny , O'Neill, Madeline , Halley, Carmel , Connolly, Michael
- Date: 2023
- Type: Text , Journal article
- Relation: Journal of Nursing Scholarship Vol. 55, no. 1 (2023), p. 154-162
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- Description: Introduction: A diagnosis of chronic illness posed a serious threat to people during the recent COVID-19 pandemic. People with chronic illnesses were faced with increased mortality and reduced access to healthcare. Self-care is the process of maintaining health and managing a chronic illness. Nurses working in specialist services provide healthcare education to people with chronic illnesses. Access to these nurses was decreased during periods of the COVID-19 virus escalation due to the reconfiguration of services and redeployment of nurses. The purpose of the research was to learn from the experiences of people with a chronic illnesses in self-care behaviors and accessing altered healthcare services to inform future practices. Design: A population survey design. Methods: A mixed methods survey was designed, combining validated questionnaires and scales with open-ended questions. A convenience sample was utilized via using social media platforms. Data analysis included descriptive and inferential statistics. Content analysis was used to analyze open-ended responses. Results: There were 147 responses, with approximately half reporting no changes in face-to-face healthcare contact, 41% reporting decreased contacts and 12% increased contacts. Non-face-to-face contacts were reduced by almost 9%, did not change by almost 60%, while 33% indicated an increase. Participants reported mixed perceptions in contact with healthcare providers during restrictions. In the Patient Assessment of Chronic Illness Care and the Self-Care of Chronic Illness scales, participants scored statistically lower scores than in previous studies. Participants indicated that public health restrictions negatively impacted their confidence, created challenges with re-engaging and that access to care was more difficult. Conclusion: This research highlights the importance of providing continued support to people with chronic illness irrespective of other challenges to healthcare services. A structured approach to virtual self-care education is required. Clinical relevance: This research concluded that the experience of access to one healthcare professional as opposed to diverse multidisciplinary input was similar for a number of chronic illnesses groups of people during the COVID-19 pandemic. There was an altered dynamic of virtual contacts with healthcare providers and a lack of confidence interpreting what monitoring was required by people with a chronic illnesses due to a lack of preparedness for virtual healthcare delivery. © 2022 The Authors. Journal of Nursing Scholarship published by Wiley Periodicals LLC on behalf of Sigma Theta Tau International.
- Authors: Ryder, Mary , Guerin, Suzanne , Forde, Rita , Lowe, Grainne , Jaarsma, Tiny , O'Neill, Madeline , Halley, Carmel , Connolly, Michael
- Date: 2023
- Type: Text , Journal article
- Relation: Journal of Nursing Scholarship Vol. 55, no. 1 (2023), p. 154-162
- Full Text:
- Reviewed:
- Description: Introduction: A diagnosis of chronic illness posed a serious threat to people during the recent COVID-19 pandemic. People with chronic illnesses were faced with increased mortality and reduced access to healthcare. Self-care is the process of maintaining health and managing a chronic illness. Nurses working in specialist services provide healthcare education to people with chronic illnesses. Access to these nurses was decreased during periods of the COVID-19 virus escalation due to the reconfiguration of services and redeployment of nurses. The purpose of the research was to learn from the experiences of people with a chronic illnesses in self-care behaviors and accessing altered healthcare services to inform future practices. Design: A population survey design. Methods: A mixed methods survey was designed, combining validated questionnaires and scales with open-ended questions. A convenience sample was utilized via using social media platforms. Data analysis included descriptive and inferential statistics. Content analysis was used to analyze open-ended responses. Results: There were 147 responses, with approximately half reporting no changes in face-to-face healthcare contact, 41% reporting decreased contacts and 12% increased contacts. Non-face-to-face contacts were reduced by almost 9%, did not change by almost 60%, while 33% indicated an increase. Participants reported mixed perceptions in contact with healthcare providers during restrictions. In the Patient Assessment of Chronic Illness Care and the Self-Care of Chronic Illness scales, participants scored statistically lower scores than in previous studies. Participants indicated that public health restrictions negatively impacted their confidence, created challenges with re-engaging and that access to care was more difficult. Conclusion: This research highlights the importance of providing continued support to people with chronic illness irrespective of other challenges to healthcare services. A structured approach to virtual self-care education is required. Clinical relevance: This research concluded that the experience of access to one healthcare professional as opposed to diverse multidisciplinary input was similar for a number of chronic illnesses groups of people during the COVID-19 pandemic. There was an altered dynamic of virtual contacts with healthcare providers and a lack of confidence interpreting what monitoring was required by people with a chronic illnesses due to a lack of preparedness for virtual healthcare delivery. © 2022 The Authors. Journal of Nursing Scholarship published by Wiley Periodicals LLC on behalf of Sigma Theta Tau International.
Perspectives on the training of Chinese Primary Health Care Physicians to reduce chronic illnesses and their burden
- Sun, Wenmin, Li, Yang, Hu, Yitting, Rao, Xin, Xu, Xingzhi, Browning, Colette, Thomas, Shane
- Authors: Sun, Wenmin , Li, Yang , Hu, Yitting , Rao, Xin , Xu, Xingzhi , Browning, Colette , Thomas, Shane
- Date: 2019
- Type: Text , Journal article
- Relation: Frontiers in Public Health Vol. 7, no. (2019), p. 1-7
- Full Text:
- Reviewed:
- Description: This paper is a commentary on the training of Chinese Primary Health Care Doctors to reduce chronic illness and its burden. First, we will consider the policy position of the Chinese government concerning the development of a competent and enlarged primary physician workforce to deliver the proposed primary health care system reforms. We then turn to a review of the drivers of the high burden of chronic illnesses especially in older people in China. We argue that the curriculum for the training of primary health care medical practitioners should match the demonstrated high prevalence chronic illnesses and their risk factors and that there needs to specific competencies in prevention and mitigation of the diseases and their risk factors.
- Authors: Sun, Wenmin , Li, Yang , Hu, Yitting , Rao, Xin , Xu, Xingzhi , Browning, Colette , Thomas, Shane
- Date: 2019
- Type: Text , Journal article
- Relation: Frontiers in Public Health Vol. 7, no. (2019), p. 1-7
- Full Text:
- Reviewed:
- Description: This paper is a commentary on the training of Chinese Primary Health Care Doctors to reduce chronic illness and its burden. First, we will consider the policy position of the Chinese government concerning the development of a competent and enlarged primary physician workforce to deliver the proposed primary health care system reforms. We then turn to a review of the drivers of the high burden of chronic illnesses especially in older people in China. We argue that the curriculum for the training of primary health care medical practitioners should match the demonstrated high prevalence chronic illnesses and their risk factors and that there needs to specific competencies in prevention and mitigation of the diseases and their risk factors.
Asthma hospitalisation trends from 2010 to 2015 : variation among rural and metropolitan Australians
- Terry, Daniel, Robins, Shalley, Gardiner, Samantha, Wyett, Ruby, Islam, Md Rafiqul
- Authors: Terry, Daniel , Robins, Shalley , Gardiner, Samantha , Wyett, Ruby , Islam, Md Rafiqul
- Date: 2017
- Type: Text , Journal article
- Relation: BMC Public Health Vol. 17, no. 1 (2017), p.
- Full Text:
- Reviewed:
- Description: Background: Asthma remains a leading cause of illness, where primary care can assist to reduce hospitalisations through prevention, controlling acute episodes, and overall management of asthma. In Victoria, Asthma hospitalisations were as high as 3.1 hospitalisations per 1000 population in 1993-94. The primary aims of this study are to: determine if changes in asthma hospitalisations have occurred between 2010 and 2015; determine the key factors that impact asthma hospitalisation over time; and verify whether rural and urban asthma hospitalisations are disparate. A secondary aim of the study is to compare 2010-2015 results with asthma data prior to 2010. Methods: Hospital separation data from 1 July 2010 to 30 June 2015 were obtained through the Victorian Admitted Episodes Dataset and other agencies. Data included sex, age, Local Government Area, private or public patient, length of stay, and type of discharge. Asthma and predictor variables were analysed according to hospital separation rates after adjusting for smoking and sex. Hierarchical multiple regression examined the association between asthma and predictor variables. Results: During the study period, 49,529 asthma hospital separations occurred, of which 77.5% were in metropolitan hospitals, 55.4% hospital separations were aged 0-14 years, and 21.7% were privately funded. State-wide hospital separations were 1.85 per 1000 population and were consistently higher in metropolitan compared to rural areas (1.93 vs 1.64 per 1000 population). When data among metropolitan adults aged 15 and over were analysed, an increase in the proportion of smokers in the population was reflected by an increase in the number of hospital separations (Adj OR 1.035). Further, among rural and metropolitan children aged 0-14 the only predictor of asthma hospital separations was sex, where metropolitan male children had higher odds of separation than metropolitan females of the same age (Adj OR 4.297). There was no statistically meaningful difference for separation rates between males and females in rural areas. Conclusions: We demonstrated a higher overall hospital separation rate in metropolitan Victoria. For children in metropolitan areas, males were hospitalised at higher rates than females, while the inverse was demonstrated for children residing in rural areas. Therefore, optimising asthma management requires consideration of the patient's age, gender and residential context. Primary health care may play a leading role in increasing health literacy for patients in order to improve self-management and health-seeking behaviour. © 2017 The Author(s).
Asthma hospitalisation trends from 2010 to 2015 : variation among rural and metropolitan Australians
- Authors: Terry, Daniel , Robins, Shalley , Gardiner, Samantha , Wyett, Ruby , Islam, Md Rafiqul
- Date: 2017
- Type: Text , Journal article
- Relation: BMC Public Health Vol. 17, no. 1 (2017), p.
- Full Text:
- Reviewed:
- Description: Background: Asthma remains a leading cause of illness, where primary care can assist to reduce hospitalisations through prevention, controlling acute episodes, and overall management of asthma. In Victoria, Asthma hospitalisations were as high as 3.1 hospitalisations per 1000 population in 1993-94. The primary aims of this study are to: determine if changes in asthma hospitalisations have occurred between 2010 and 2015; determine the key factors that impact asthma hospitalisation over time; and verify whether rural and urban asthma hospitalisations are disparate. A secondary aim of the study is to compare 2010-2015 results with asthma data prior to 2010. Methods: Hospital separation data from 1 July 2010 to 30 June 2015 were obtained through the Victorian Admitted Episodes Dataset and other agencies. Data included sex, age, Local Government Area, private or public patient, length of stay, and type of discharge. Asthma and predictor variables were analysed according to hospital separation rates after adjusting for smoking and sex. Hierarchical multiple regression examined the association between asthma and predictor variables. Results: During the study period, 49,529 asthma hospital separations occurred, of which 77.5% were in metropolitan hospitals, 55.4% hospital separations were aged 0-14 years, and 21.7% were privately funded. State-wide hospital separations were 1.85 per 1000 population and were consistently higher in metropolitan compared to rural areas (1.93 vs 1.64 per 1000 population). When data among metropolitan adults aged 15 and over were analysed, an increase in the proportion of smokers in the population was reflected by an increase in the number of hospital separations (Adj OR 1.035). Further, among rural and metropolitan children aged 0-14 the only predictor of asthma hospital separations was sex, where metropolitan male children had higher odds of separation than metropolitan females of the same age (Adj OR 4.297). There was no statistically meaningful difference for separation rates between males and females in rural areas. Conclusions: We demonstrated a higher overall hospital separation rate in metropolitan Victoria. For children in metropolitan areas, males were hospitalised at higher rates than females, while the inverse was demonstrated for children residing in rural areas. Therefore, optimising asthma management requires consideration of the patient's age, gender and residential context. Primary health care may play a leading role in increasing health literacy for patients in order to improve self-management and health-seeking behaviour. © 2017 The Author(s).
Constructions of chronic illness
- Wellard, Sally, Beddoes, Lenore
- Authors: Wellard, Sally , Beddoes, Lenore
- Date: 2005
- Type: Text , Book chapter
- Relation: Living with illness : Psychosocial challenges for nursing Chapter 8 p. 97-113
- Full Text: false
- Description: 2003001054
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