Juggling type 1 diabetes and pregnancy in rural Australia
- King, Rosemary, Wellard, Sally
- Authors: King, Rosemary , Wellard, Sally
- Date: 2009
- Type: Text , Journal article
- Relation: Midwifery Vol. 25, no. 2 (2009), p. 126-133
- Full Text:
- Reviewed:
- Description: Objective: to explore the experiences of women with type 1 diabetes, living in rural Australia, while preparing for pregnancy and childbirth. Additionally, we aimed to describe the women's engagement with, and expectations of, health-care providers during this period, and subsequently highlight potential service and informational gaps. Design: qualitative research using a collective case-study design; seven women with type 1 diabetes who had given birth within the previous 12 months participated in in-depth interviews about their experiences of pregnancy and birth. Data were analysed thematically. Setting: The experience of type 1 diabetes, preconception preparation and pregnancy among rural Australian women was explored, including interactions with health professionals. Participants: seven women aged between 26 and 35 years agreed to be interviewed. The woman had one or two children and had given birth within the past 12 months. Findings: rigid narrow control of blood glucose levels before conception and during pregnancy created unfamiliar body responses for women, with hypoglycaemic symptoms disappearing or changing. For example, some women mentioned developing tunnel vision or numbness and tingling around their lips and tongue as different symptoms of hypoglycaemia. Women needed information and support to differentiate between what might be normal or abnormal bodily processes associated with pregnancy, diabetes, or both. The women's preparation for conception and pregnancy was reliant on the level of available expertise and advice. Participants' experiences were coloured by their limited access and interactions with expert health professionals. Conclusion: women with type 1 diabetes experienced significant hardship during their pregnancy, including a higher incidence of hypoglycaemic episodes, a loss of hypoglycaemic symptom recognition and weight gain. These difficulties were compounded by a scarcity of available information to support the management of their pregnancy and a lack of availability of experienced health professionals. Implications for practice: national and international consensus guidelines emphasise the importance of preconception and pregnancy care for women with type 1 diabetes. Close clinical supervision and the development of closer co-operation and partnership between the women and health-care providers before conception and during pregnancy may improve outcomes for these women and their babies. Building confidence in professional care requires increased access to specialist services, increased levels of demonstrated knowledge and expertise and better general community access to information about preparation for pregnancy and birth among women who have type 1 diabetes. © 2007 Elsevier Ltd. All rights reserved.
- Authors: King, Rosemary , Wellard, Sally
- Date: 2009
- Type: Text , Journal article
- Relation: Midwifery Vol. 25, no. 2 (2009), p. 126-133
- Full Text:
- Reviewed:
- Description: Objective: to explore the experiences of women with type 1 diabetes, living in rural Australia, while preparing for pregnancy and childbirth. Additionally, we aimed to describe the women's engagement with, and expectations of, health-care providers during this period, and subsequently highlight potential service and informational gaps. Design: qualitative research using a collective case-study design; seven women with type 1 diabetes who had given birth within the previous 12 months participated in in-depth interviews about their experiences of pregnancy and birth. Data were analysed thematically. Setting: The experience of type 1 diabetes, preconception preparation and pregnancy among rural Australian women was explored, including interactions with health professionals. Participants: seven women aged between 26 and 35 years agreed to be interviewed. The woman had one or two children and had given birth within the past 12 months. Findings: rigid narrow control of blood glucose levels before conception and during pregnancy created unfamiliar body responses for women, with hypoglycaemic symptoms disappearing or changing. For example, some women mentioned developing tunnel vision or numbness and tingling around their lips and tongue as different symptoms of hypoglycaemia. Women needed information and support to differentiate between what might be normal or abnormal bodily processes associated with pregnancy, diabetes, or both. The women's preparation for conception and pregnancy was reliant on the level of available expertise and advice. Participants' experiences were coloured by their limited access and interactions with expert health professionals. Conclusion: women with type 1 diabetes experienced significant hardship during their pregnancy, including a higher incidence of hypoglycaemic episodes, a loss of hypoglycaemic symptom recognition and weight gain. These difficulties were compounded by a scarcity of available information to support the management of their pregnancy and a lack of availability of experienced health professionals. Implications for practice: national and international consensus guidelines emphasise the importance of preconception and pregnancy care for women with type 1 diabetes. Close clinical supervision and the development of closer co-operation and partnership between the women and health-care providers before conception and during pregnancy may improve outcomes for these women and their babies. Building confidence in professional care requires increased access to specialist services, increased levels of demonstrated knowledge and expertise and better general community access to information about preparation for pregnancy and birth among women who have type 1 diabetes. © 2007 Elsevier Ltd. All rights reserved.
Parent-mediated pathways to care for rural adolescents with depression
- Authors: Jamieson, Rachel
- Date: 2008
- Type: Thesis , PhD
- Full Text:
- Description: This research aimed to explore the role of parents in seeking help for rural adolescents with depression.
- Description: Doctor of Psychology (Clinical)
- Authors: Jamieson, Rachel
- Date: 2008
- Type: Thesis , PhD
- Full Text:
- Description: This research aimed to explore the role of parents in seeking help for rural adolescents with depression.
- Description: Doctor of Psychology (Clinical)
Pedagogy not political pointscoring: How training providers teach international students
- Authors: Smith, Erica
- Date: 2010
- Type: Text , Conference paper
- Relation: AVETRA 13th Annual Conference: VET Research: Leading and responding in turbulent times p. 1-12
- Full Text:
- Reviewed:
- Description: 2009 was a bad year for Australia's international vocational education and training (VET) industry. Racism affecting international students on the streets and in the national media discouraged students from applying to study in Australia and made international education the centre of political controversy. In such an environment it has been easy to lose sight of the teaching and learning processes that are at the heart of VET for international students. This paper reports on part of a research project, funded by Service Skills Australia, that examined VET practitioners in the service industries. As part of that project the author carried out case studies in two registered training organisations (RTOs) that delivered training to substantial numbers of hospitality students and interviewed senior managers from four other RTOs. Staff and students alike reported on the benefits of having international students enrolled in their courses, and reported instances of good practice in pedagogy that have implications well beyond the international student cohort.
- Authors: Smith, Erica
- Date: 2010
- Type: Text , Conference paper
- Relation: AVETRA 13th Annual Conference: VET Research: Leading and responding in turbulent times p. 1-12
- Full Text:
- Reviewed:
- Description: 2009 was a bad year for Australia's international vocational education and training (VET) industry. Racism affecting international students on the streets and in the national media discouraged students from applying to study in Australia and made international education the centre of political controversy. In such an environment it has been easy to lose sight of the teaching and learning processes that are at the heart of VET for international students. This paper reports on part of a research project, funded by Service Skills Australia, that examined VET practitioners in the service industries. As part of that project the author carried out case studies in two registered training organisations (RTOs) that delivered training to substantial numbers of hospitality students and interviewed senior managers from four other RTOs. Staff and students alike reported on the benefits of having international students enrolled in their courses, and reported instances of good practice in pedagogy that have implications well beyond the international student cohort.
To err is human: medication patient safety in aged care, a case study
- Gilbert, Julia, Kim, Jeong-Ah
- Authors: Gilbert, Julia , Kim, Jeong-Ah
- Date: 2018
- Type: Text , Journal article
- Relation: Quality in Ageing and Older Adults Vol. 19, no. 2 (2018), p. 126-134
- Full Text:
- Reviewed:
- Description: Purpose: The purpose of this paper is to explore an identified medication error using a root cause analysis and a clinical case study. Design/methodology/approach: In this paper the authors explore a medication error through the completion of a root cause analysis and case study in an aged care facility. Findings: Research indicates that medication errors are highly prevalent in aged care and 40 per cent of nursing home patients are regularly receiving at least one potentially inappropriate medicine (Hamilton, 2009; Raban et al., 2014; Shehab et al., 2016). Insufficient patient information, delays in continuing medications, poor communication, the absence of an up-to-date medication chart and missed or significantly delayed doses are all linked to medication errors (Dwyer et al., 2014). Strategies to improve medication management across hospitalisation to medication administration include utilisation of a computerised medication prescription and management system, pharmacist review, direct communication of discharge medication documentation to community pharmacists and staff education and support (Dolanski et al., 2013). Originality/value: Discussion of the factors impacting on medication errors within aged care facilities may explain why they are prevalent and serve as a basis for strategies to improve medication management and facilitate further research on this topic.
- Authors: Gilbert, Julia , Kim, Jeong-Ah
- Date: 2018
- Type: Text , Journal article
- Relation: Quality in Ageing and Older Adults Vol. 19, no. 2 (2018), p. 126-134
- Full Text:
- Reviewed:
- Description: Purpose: The purpose of this paper is to explore an identified medication error using a root cause analysis and a clinical case study. Design/methodology/approach: In this paper the authors explore a medication error through the completion of a root cause analysis and case study in an aged care facility. Findings: Research indicates that medication errors are highly prevalent in aged care and 40 per cent of nursing home patients are regularly receiving at least one potentially inappropriate medicine (Hamilton, 2009; Raban et al., 2014; Shehab et al., 2016). Insufficient patient information, delays in continuing medications, poor communication, the absence of an up-to-date medication chart and missed or significantly delayed doses are all linked to medication errors (Dwyer et al., 2014). Strategies to improve medication management across hospitalisation to medication administration include utilisation of a computerised medication prescription and management system, pharmacist review, direct communication of discharge medication documentation to community pharmacists and staff education and support (Dolanski et al., 2013). Originality/value: Discussion of the factors impacting on medication errors within aged care facilities may explain why they are prevalent and serve as a basis for strategies to improve medication management and facilitate further research on this topic.
Understanding the psychological contract in apprenticeships and traineeships to improve retention
- Smith, Erica, Walker, Arlene, Kemmis, Ros Brennan
- Authors: Smith, Erica , Walker, Arlene , Kemmis, Ros Brennan
- Date: 2011
- Type: Text , Technical report
- Relation: National Vocational Education and Training Research and Evaluation Program
- Full Text:
- Description: Attrition in apprenticeships and traineeships is an ongoing concern for employers and government alike, with completion standing at around 50% on average. One possible explanation for this high attrition rate that there is mismatch between the respective expectations of apprentices/trainees and employers. This research use the concept of psychological contract, that is, the perceived mutual obligations betweens employers and employees of themselves and each other, to test this explanation.
- Authors: Smith, Erica , Walker, Arlene , Kemmis, Ros Brennan
- Date: 2011
- Type: Text , Technical report
- Relation: National Vocational Education and Training Research and Evaluation Program
- Full Text:
- Description: Attrition in apprenticeships and traineeships is an ongoing concern for employers and government alike, with completion standing at around 50% on average. One possible explanation for this high attrition rate that there is mismatch between the respective expectations of apprentices/trainees and employers. This research use the concept of psychological contract, that is, the perceived mutual obligations betweens employers and employees of themselves and each other, to test this explanation.
Enterprise RTOs in Australia: An overview from research data
- Smith, Erica, Smith, Andy, Walker, Andrew
- Authors: Smith, Erica , Smith, Andy , Walker, Andrew
- Date: 2015
- Type: Text , Conference paper
- Relation: AVETRA, Sydney, 8th-10th April, 2015
- Full Text:
- Reviewed:
- Description: This paper reports on overview data from a national research project funded through the Australian Research Council Linkage program. The research question for the project as a whole was 'How do qualifications delivered by enterprises contribute to improved skill levels and other benefits for companies, workers and the nation?' The research was carried out with the support of the Enterprise RTO Association. Enterprise registered training organisations (RTOs) are companies that are accredited to deliver qualifications to their own workers. These 250 RTOs have to meet the same registration and quality standards as institutional training providers. The project as a whole included qualitative and quantitative components. It included longitudinal case studies in eight enterprise RTOs. This paper reports on part of the quantitative research. It presents findings and preliminary analysis of two surveys of enterprise RTOs (2012 and 2014), and a 2013 learner survey undertaken in the case study RTOs. The enterprise RTO surveys included a range of questions about the enterprise itself, and about the RTO's qualifications, learners, and training methods. The learner survey asked respondents about their views about training and outcomes. The response rates for the surveys were 35.7 per cent and 26 per cent respectively, with a representative distribution across industry areas. The paper provides a snapshot of the operations of enterprise RTOs and the views of those gaining qualifications in this context. Published abstract.
- Authors: Smith, Erica , Smith, Andy , Walker, Andrew
- Date: 2015
- Type: Text , Conference paper
- Relation: AVETRA, Sydney, 8th-10th April, 2015
- Full Text:
- Reviewed:
- Description: This paper reports on overview data from a national research project funded through the Australian Research Council Linkage program. The research question for the project as a whole was 'How do qualifications delivered by enterprises contribute to improved skill levels and other benefits for companies, workers and the nation?' The research was carried out with the support of the Enterprise RTO Association. Enterprise registered training organisations (RTOs) are companies that are accredited to deliver qualifications to their own workers. These 250 RTOs have to meet the same registration and quality standards as institutional training providers. The project as a whole included qualitative and quantitative components. It included longitudinal case studies in eight enterprise RTOs. This paper reports on part of the quantitative research. It presents findings and preliminary analysis of two surveys of enterprise RTOs (2012 and 2014), and a 2013 learner survey undertaken in the case study RTOs. The enterprise RTO surveys included a range of questions about the enterprise itself, and about the RTO's qualifications, learners, and training methods. The learner survey asked respondents about their views about training and outcomes. The response rates for the surveys were 35.7 per cent and 26 per cent respectively, with a representative distribution across industry areas. The paper provides a snapshot of the operations of enterprise RTOs and the views of those gaining qualifications in this context. Published abstract.
Views of VET teachers, managers and students about VET teacher qualifications
- Smith, Erica, Yasukawa, Keiko
- Authors: Smith, Erica , Yasukawa, Keiko
- Date: 2016
- Type: Text , Conference proceedings
- Relation: Putting VET Research To Work, AVETRA conference; Sydney; 2016
- Full Text:
- Reviewed:
- Description: This paper reports on some initial research into what students, teachers and managers in training providers think about qualifications for vocational education and training (VET) teachers and trainers. In 2011, a Productivity Commission research report on the VET workforce identified 'some clear deficiencies [that] should be addressed', but rejected a change to required qualifications because of lack of research evidence, at that time, that higher-level qualifications would make a difference. This paper reports on preliminary observations from a major Australian Research Council funded project that set out to investigate this matter. The project has several stages, and this paper, by two of the projects' four researchers, examines early data from four of eight case studies. The case study sites were based in two states and comprised two TAFE institutes, a not-for-profit college, and a for-profit private VET provider. In the case studies, senior managers, teachers and trainers in different discipline areas, and learners, were interviewed to elicit their views on whether or how teachers' pedagogical and industry qualifications mattered in the quality of teaching and in teachers' contributions to the institution. The paper explains the different participants' views and the reasons they gave for their views. The project as a whole includes several other data sources.
- Authors: Smith, Erica , Yasukawa, Keiko
- Date: 2016
- Type: Text , Conference proceedings
- Relation: Putting VET Research To Work, AVETRA conference; Sydney; 2016
- Full Text:
- Reviewed:
- Description: This paper reports on some initial research into what students, teachers and managers in training providers think about qualifications for vocational education and training (VET) teachers and trainers. In 2011, a Productivity Commission research report on the VET workforce identified 'some clear deficiencies [that] should be addressed', but rejected a change to required qualifications because of lack of research evidence, at that time, that higher-level qualifications would make a difference. This paper reports on preliminary observations from a major Australian Research Council funded project that set out to investigate this matter. The project has several stages, and this paper, by two of the projects' four researchers, examines early data from four of eight case studies. The case study sites were based in two states and comprised two TAFE institutes, a not-for-profit college, and a for-profit private VET provider. In the case studies, senior managers, teachers and trainers in different discipline areas, and learners, were interviewed to elicit their views on whether or how teachers' pedagogical and industry qualifications mattered in the quality of teaching and in teachers' contributions to the institution. The paper explains the different participants' views and the reasons they gave for their views. The project as a whole includes several other data sources.
Forced retirement transition : a narrative case study of an elite Australian Rules football player
- Demetriou, Andreas, Jago, Andrew, Gill, Peter, Mesagno, Christopher, Ali, Lutfiye
- Authors: Demetriou, Andreas , Jago, Andrew , Gill, Peter , Mesagno, Christopher , Ali, Lutfiye
- Date: 2020
- Type: Text , Journal article
- Relation: International Journal of Sport and Exercise Psychology Vol. 18, no. 3 (2020), p. 321-335
- Full Text:
- Reviewed:
- Description: Retirement from elite sport is a complex and often-problematic process. The current study explores a negative case study of an athlete recently retired from a team sport (Australian Rules Football) in order to generate knowledge on how to improve the retirement process. Three semi-structured interviews were undertaken less than 5 years post retirement, and archival career records were gathered from online sources. Data were coded to construct a narrative account of the participant’s career and retirement. Narrative analysis also revealed that the retirement transition from elite sports for this athlete was problematic and caused considerable personal distress. We suggest that the means of improving retirement transition and reducing harm to players include fostering alternative life narratives and increasing self-complexity, utilising norm appropriate communication strategies, and recognising retirement as a potential grieving period for loss of community. © 2018, © 2018 International Society of Sport Psychology.
- Authors: Demetriou, Andreas , Jago, Andrew , Gill, Peter , Mesagno, Christopher , Ali, Lutfiye
- Date: 2020
- Type: Text , Journal article
- Relation: International Journal of Sport and Exercise Psychology Vol. 18, no. 3 (2020), p. 321-335
- Full Text:
- Reviewed:
- Description: Retirement from elite sport is a complex and often-problematic process. The current study explores a negative case study of an athlete recently retired from a team sport (Australian Rules Football) in order to generate knowledge on how to improve the retirement process. Three semi-structured interviews were undertaken less than 5 years post retirement, and archival career records were gathered from online sources. Data were coded to construct a narrative account of the participant’s career and retirement. Narrative analysis also revealed that the retirement transition from elite sports for this athlete was problematic and caused considerable personal distress. We suggest that the means of improving retirement transition and reducing harm to players include fostering alternative life narratives and increasing self-complexity, utilising norm appropriate communication strategies, and recognising retirement as a potential grieving period for loss of community. © 2018, © 2018 International Society of Sport Psychology.
Management practices and innovation capacity in enterprises
- Smith, Andy, Courvisanos, Jerry, McEachern, Steven, Tuck, Jacqueline
- Authors: Smith, Andy , Courvisanos, Jerry , McEachern, Steven , Tuck, Jacqueline
- Date: 2011
- Type: Text , Conference paper
- Relation: Paper presented at AVETRA, Research in VET: Janus- Reflecting back, projecting forward Vol. 2011, p. 1-14
- Full Text:
- Reviewed:
- Description: This paper reports on a project which seeks to identify the role of human capital formation in promoting innovation in Australian enterprises and the ways in which enterprises can improve their human resource management and learning and development practices to improve their innovation performance. There are a number of factors that affect enterprises' ability to innovate. These include internal factors such as the ability to detect technological changes in the environment, the development of core competencies from which innovation can develop and external factors such as the maturity of the market which the enterprise serves and the impact of government policy to stimulate innovation. A range of studies have suggested that human factors within the enterprise are critical to innovation. However, these studies have not established exactly what practices enterprises need to put in place to improve their 'innovation capacity'. This paper reports the results from the research. The research method involved a survey of over 2,500 business enterprises and seven case studies drawn from the manufacturing, [information and communication technology] ICT and finance industries. The paper will discuss the major findings from the research.
- Description: 2003008977
- Authors: Smith, Andy , Courvisanos, Jerry , McEachern, Steven , Tuck, Jacqueline
- Date: 2011
- Type: Text , Conference paper
- Relation: Paper presented at AVETRA, Research in VET: Janus- Reflecting back, projecting forward Vol. 2011, p. 1-14
- Full Text:
- Reviewed:
- Description: This paper reports on a project which seeks to identify the role of human capital formation in promoting innovation in Australian enterprises and the ways in which enterprises can improve their human resource management and learning and development practices to improve their innovation performance. There are a number of factors that affect enterprises' ability to innovate. These include internal factors such as the ability to detect technological changes in the environment, the development of core competencies from which innovation can develop and external factors such as the maturity of the market which the enterprise serves and the impact of government policy to stimulate innovation. A range of studies have suggested that human factors within the enterprise are critical to innovation. However, these studies have not established exactly what practices enterprises need to put in place to improve their 'innovation capacity'. This paper reports the results from the research. The research method involved a survey of over 2,500 business enterprises and seven case studies drawn from the manufacturing, [information and communication technology] ICT and finance industries. The paper will discuss the major findings from the research.
- Description: 2003008977
The search for computer science concepts in coding animated narratives: tensions and opportunities
- Authors: Woo, Karen , Falloon, Garry
- Date: 2023
- Type: Text , Journal article
- Relation: Journal of Educational Computing Research Vol. 61, no. 7 (2023), p. 1335-1358
- Relation: https://purl.org/au-research/grants/arc/DP190100228
- Full Text:
- Reviewed:
- Description: Coding is increasingly popular in schools around the world and is often taught by non-specialist teachers as an integrated task with other subject areas. In this article, we explore the relationship between computer science (CS) concepts and students’ multimodal expression in a coding animated narrative (CAN) task in the context of an integrated English-Technology unit of learning. Through this collective case study, we explore how CS concepts underpin semiotic elements of an animated narrative, analyse the factors that influence the extent to which students exercise those concepts, and reveal the tensions and opportunities that a CAN task may present for learning computer science concepts in regular, non-specialist, cross-curricular classrooms. The findings suggest that CAN tasks are unique in presenting opportunities for students to learn challenging CS concepts such as synchronisation and parallelism. At the same time, CAN tasks present tensions for teaching CS concepts in non-specialist classrooms, where student projects are often judged on their visual qualities. In such settings, procedural, rather than conceptual knowledge, may be a more efficient route to creative outcomes. It also means that drawing skills need to be prioritised. Role specialisation often led to better quality projects but at the expense of individual students’ conceptual development in computer science. © The Author(s) 2023.
- Authors: Woo, Karen , Falloon, Garry
- Date: 2023
- Type: Text , Journal article
- Relation: Journal of Educational Computing Research Vol. 61, no. 7 (2023), p. 1335-1358
- Relation: https://purl.org/au-research/grants/arc/DP190100228
- Full Text:
- Reviewed:
- Description: Coding is increasingly popular in schools around the world and is often taught by non-specialist teachers as an integrated task with other subject areas. In this article, we explore the relationship between computer science (CS) concepts and students’ multimodal expression in a coding animated narrative (CAN) task in the context of an integrated English-Technology unit of learning. Through this collective case study, we explore how CS concepts underpin semiotic elements of an animated narrative, analyse the factors that influence the extent to which students exercise those concepts, and reveal the tensions and opportunities that a CAN task may present for learning computer science concepts in regular, non-specialist, cross-curricular classrooms. The findings suggest that CAN tasks are unique in presenting opportunities for students to learn challenging CS concepts such as synchronisation and parallelism. At the same time, CAN tasks present tensions for teaching CS concepts in non-specialist classrooms, where student projects are often judged on their visual qualities. In such settings, procedural, rather than conceptual knowledge, may be a more efficient route to creative outcomes. It also means that drawing skills need to be prioritised. Role specialisation often led to better quality projects but at the expense of individual students’ conceptual development in computer science. © The Author(s) 2023.
Language and the built, natural, social, and symbolic environments during bad news conversations for people with a life-limiting illness : a case study methodology
- Authors: Miller, Elizabeth
- Date: 2023
- Type: Text , Thesis , PhD
- Full Text: false
- Description: Background Bad news of a life-limiting illness is devastating to receive and remains a difficult conversation for healthcare professionals to undertake, despite education and training. Bad news conversations occur anywhere along an illness trajectory and often take place with the acute ward that is busy, sterile, and unfamiliar to patients and family members. Method A qualitative case study research methodology was used to explore the case, being the phenomenon of receiving bad news of a life-limiting illness for people living in regional Victoria, Australia. The literature was examined to understand the physical hospital environment and truth disclosure within bad news delivery. Data was collected between November 2021 and August 2022, through 14 semi-structured interviews with patients and family members, 13 semi-structured interviews with registered nurses, a three week observation period at a private regional hospital. The theoretical framework of Therapeutic Landscapes enabled the built, nature, social, and symbolic environments to be examined. Data was analysed using reflexive thematic analysis and qualitative content analysis. Results A review of the literature resulted in the development of the "SSAFER place approach" concept model and found that patients need to feel safe in the hospital environment and that safety is equated with space for family and familiar notions of home. Nurses aimed to provide holistic person-centred through therapeutic relationships with patients and family members and create a home-life environment. It was found that a calm and quiet environment was essential for absorbing bad news, and patients and family members believed the way bad news was delivered, and the language used often needed to be improved. The audit of 17 family meeting s highlighted that death and dying language was rarely documented, and late referrals to palliative care services often occurred. The "Breaking bad news model," created from a second literature review supported the results of the thesis. Due to the COVID-19 pandemic, patients, family members and nurses were negatively affected, creating a non-therapeutic social environment. Conclusion For patients and family members, a therapeutic landscape comprised of therapeutic relationship, open, honest and empathetic language delivered within holistic person-centred care. In addition, care needed to be provided within a calm and quiet environment to allow absorption and processing of bad news. Nurses providing palliative care aimed to meet patients and family needs holistically within an environment aesthetically tuned to be more home-like than clinical.
- Description: Doctor of Philosophy
- Authors: Miller, Elizabeth
- Date: 2023
- Type: Text , Thesis , PhD
- Full Text: false
- Description: Background Bad news of a life-limiting illness is devastating to receive and remains a difficult conversation for healthcare professionals to undertake, despite education and training. Bad news conversations occur anywhere along an illness trajectory and often take place with the acute ward that is busy, sterile, and unfamiliar to patients and family members. Method A qualitative case study research methodology was used to explore the case, being the phenomenon of receiving bad news of a life-limiting illness for people living in regional Victoria, Australia. The literature was examined to understand the physical hospital environment and truth disclosure within bad news delivery. Data was collected between November 2021 and August 2022, through 14 semi-structured interviews with patients and family members, 13 semi-structured interviews with registered nurses, a three week observation period at a private regional hospital. The theoretical framework of Therapeutic Landscapes enabled the built, nature, social, and symbolic environments to be examined. Data was analysed using reflexive thematic analysis and qualitative content analysis. Results A review of the literature resulted in the development of the "SSAFER place approach" concept model and found that patients need to feel safe in the hospital environment and that safety is equated with space for family and familiar notions of home. Nurses aimed to provide holistic person-centred through therapeutic relationships with patients and family members and create a home-life environment. It was found that a calm and quiet environment was essential for absorbing bad news, and patients and family members believed the way bad news was delivered, and the language used often needed to be improved. The audit of 17 family meeting s highlighted that death and dying language was rarely documented, and late referrals to palliative care services often occurred. The "Breaking bad news model," created from a second literature review supported the results of the thesis. Due to the COVID-19 pandemic, patients, family members and nurses were negatively affected, creating a non-therapeutic social environment. Conclusion For patients and family members, a therapeutic landscape comprised of therapeutic relationship, open, honest and empathetic language delivered within holistic person-centred care. In addition, care needed to be provided within a calm and quiet environment to allow absorption and processing of bad news. Nurses providing palliative care aimed to meet patients and family needs holistically within an environment aesthetically tuned to be more home-like than clinical.
- Description: Doctor of Philosophy
Simplifying qualitative case study research methodology : a step-by-step guide using a palliative care example
- Miller, Elizabeth, Porter, Joanne, Barbagallo, Michael
- Authors: Miller, Elizabeth , Porter, Joanne , Barbagallo, Michael
- Date: 2023
- Type: Text , Journal article
- Relation: Qualitative Report Vol. 28, no. 8 (2023), p. 2363-2379
- Full Text:
- Reviewed:
- Description: Qualitative case study research can be a helpful methodology when conducting health research. However, it can be overlooked or dismissed as a possible methodological choice due to different epistemological positionings by case study theorists and often confusing and contradictory definitions and terminology. Much has been written about case studies, but it takes time to wade through volumes of often philosophically and methodologically dense material to locate a theorist who presents case study research at a depth the novice researcher can understand. Case study research literature may offer a condensed summary of processes but often needs more theoretical detail. Therefore, discerning where to begin can be time-consuming, frustrating, and overwhelming. There are very few qualitative case study protocols and no step-by-step guide describing the planning and decision-making process within nursing. To address the need for clarity, this article endeavors to set out how to conduct a qualitative case study in a step-by-step guide using the approaches of Merriam and Stake as the foundation using a palliative care setting as an application example. It contributes to knowledge and practice by developing a foundational understanding of case study methodology in the hope that novice researchers will consider case study research as a methodological choice for their study and conduct it in a trustworthy and rigorous manner. Copyright 2023: Elizabeth M. Miller, Joanne E. Porter, Michael S. Barbagallo, and Nova Southeastern University.
- Authors: Miller, Elizabeth , Porter, Joanne , Barbagallo, Michael
- Date: 2023
- Type: Text , Journal article
- Relation: Qualitative Report Vol. 28, no. 8 (2023), p. 2363-2379
- Full Text:
- Reviewed:
- Description: Qualitative case study research can be a helpful methodology when conducting health research. However, it can be overlooked or dismissed as a possible methodological choice due to different epistemological positionings by case study theorists and often confusing and contradictory definitions and terminology. Much has been written about case studies, but it takes time to wade through volumes of often philosophically and methodologically dense material to locate a theorist who presents case study research at a depth the novice researcher can understand. Case study research literature may offer a condensed summary of processes but often needs more theoretical detail. Therefore, discerning where to begin can be time-consuming, frustrating, and overwhelming. There are very few qualitative case study protocols and no step-by-step guide describing the planning and decision-making process within nursing. To address the need for clarity, this article endeavors to set out how to conduct a qualitative case study in a step-by-step guide using the approaches of Merriam and Stake as the foundation using a palliative care setting as an application example. It contributes to knowledge and practice by developing a foundational understanding of case study methodology in the hope that novice researchers will consider case study research as a methodological choice for their study and conduct it in a trustworthy and rigorous manner. Copyright 2023: Elizabeth M. Miller, Joanne E. Porter, Michael S. Barbagallo, and Nova Southeastern University.
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