A participatory information management framework for patient centred care of autism spectrum disorder
- Authors: De Silva, Daswin , Burstein, Frada , Stranieri, Andrew , Williams, Katrina , Rinehart, Nicole
- Date: 2013
- Type: Text , Conference paper
- Relation: Information systems: Transforming the future 24th Australasian Conference on Information p. 2-11
- Full Text: false
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A patient agent to manage blockchains for remote patient monitoring
- Authors: Uddin, Ashraf , Stranieri, Andrew , Gondal, Iqbal , Balasubramanian, Venki
- Date: 2018
- Type: Text , Conference proceedings
- Relation: 7th International Conference on Global Telehealth, GT 2018; Colombo, Sri Lanka; 10th-11th October 2018; published in Studies in Health Technology and Informatics Vol. 254, p. 105-115
- Full Text: false
- Reviewed:
- Description: Continuous monitoring of patient's physiological signs has the potential to augment traditional medical practice, particularly in developing countries that have a shortage of healthcare professionals. However, continuously streamed data presents additional security, storage and retrieval challenges and further inhibits initiatives to integrate data to form electronic health record systems. Blockchain technologies enable data to be stored securely and inexpensively without recourse to a trusted authority. Blockchain technologies also promise to provide architectures for electronic health records that do not require huge government expenditure that challenge developing nations. However, Blockchain deployment, particularly with streamed data challenges existing Blockchain algorithms that take too long to place data in a block, and have no mechanism to determine whether every data point in every stream should be stored in such a secure way. This article presents an architecture that involves a Patient Agent, coordinating the insertion of continuous data streams into Blockchains to form an electronic health record.
- Description: Studies in Health Technology and Informatics
Rapid health data repository allocation using predictive machine learning
- Authors: Uddin, Ashraf , Stranieri, Andrew , Gondal, Iqbal , Balasubramanian, Venki
- Date: 2020
- Type: Text , Journal article
- Relation: Health Informatics Journal Vol. 26, no. 4 (2020), p. 3009-3036
- Full Text:
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- Description: Health-related data is stored in a number of repositories that are managed and controlled by different entities. For instance, Electronic Health Records are usually administered by governments. Electronic Medical Records are typically controlled by health care providers, whereas Personal Health Records are managed directly by patients. Recently, Blockchain-based health record systems largely regulated by technology have emerged as another type of repository. Repositories for storing health data differ from one another based on cost, level of security and quality of performance. Not only has the type of repositories increased in recent years, but the quantum of health data to be stored has increased. For instance, the advent of wearable sensors that capture physiological signs has resulted in an exponential growth in digital health data. The increase in the types of repository and amount of data has driven a need for intelligent processes to select appropriate repositories as data is collected. However, the storage allocation decision is complex and nuanced. The challenges are exacerbated when health data are continuously streamed, as is the case with wearable sensors. Although patients are not always solely responsible for determining which repository should be used, they typically have some input into this decision. Patients can be expected to have idiosyncratic preferences regarding storage decisions depending on their unique contexts. In this paper, we propose a predictive model for the storage of health data that can meet patient needs and make storage decisions rapidly, in real-time, even with data streaming from wearable sensors. The model is built with a machine learning classifier that learns the mapping between characteristics of health data and features of storage repositories from a training set generated synthetically from correlations evident from small samples of experts. Results from the evaluation demonstrate the viability of the machine learning technique used. © The Author(s) 2020.
Supporting regional aged care nursing staff to manage residents’ behavioural and psychological symptoms of dementia, in real time, using the nurses’ behavioural assistant (NBA) : A pilot site 'end-user attitudes’ trial
- Authors: Klein, Britt , Clinnick, Lisa , Chesler, Jessica , Stranieri, Andrew , Bignold, Adam , Dazeley, Richard , McLaren, Suzanne , Lauder, Sue , Balasubramanian, Venki
- Date: 2018
- Type: Text , Conference paper
- Relation: 2017 Global Telehealth Meeting, GT 201; Adelaide, Australia; 22nd-24th November 2017; published in Telehealth for our Ageing Society (part of the Studies in Health Technology and Informatics series) Vol. 246, p. 24-28
- Full Text: false
- Reviewed:
- Description: Background: This regional pilot site ‘end-user attitudes’ study explored nurses’ experiences and impressions of using the Nurses’ Behavioural Assistant (NBA) (a knowledge-based, interactive ehealth system) to assist them to better respond to behavioural and psychological symptoms of dementia (BPSD) and will be reported here. Methods: Focus groups were conducted, followed by a four-week pilot site ‘end-user attitudes’ trial of the NBA at a regional aged care residential facility (ACRF). Brief interviews were conducted with consenting nursing staff. Results: Focus group feedback (N = 10) required only minor cosmetic changes to the NBA prototype. Post pilot site end-user interview data (N = 10) indicated that the regional ACRF nurses were positive and enthusiastic about the NBA, however several issues were also identified. Conclusions: Overall the results supported the utility of the NBA to promote a person centred care approach to managing BPSD. Slight modifications may be required to maximise its uptake across all ACRF nursing staff.
The delicate balance of communicational interests : a Bakhtinian view of social media in health care
- Authors: Ukoha, Chukwuma , Stranieri, Andrew
- Date: 2020
- Type: Text , Journal article
- Relation: Journal of Information, Communication and Ethics in Society Vol. 19, no. 2 (2020), p. 236-248
- Full Text: false
- Reviewed:
- Description: Purpose: This paper aims to use the writings of Mikhail Bakhtin to reveal new insights into the role and impact of social media in health-care settings. Design/methodology/approach: With the help of Bakhtin’s constructs of dialogism, polyphony, heteroglossia and carnival, the power and influences of the social media phenomenon in health-care settings, are explored. Findings: It is apparent from the in-depth analysis conducted that there is a delicate balance between the need to increase dialogue and the need to safeguard public health, in the use of social media for health-related communication. Bakhtin‘s constructs elucidate this delicate balance and highlight the need for health-care providers that use social media to find the right balance between these competing communicational priorities. Originality/value: This paper advances a nascent theoretical approach to social media research. By applying Bakhtinian ideas to consumer health informatics, this paper has the potential to open a new approach to theorizing the role of social software in health-care settings. Stakeholders in digital health will find this paper useful, as it opens up dialogue to further discuss the role of social media in health care. © 2020, Emerald Publishing Limited.