Normalization behaviours of rural fathers living with chronically-ill children : An Australian experience
- Authors: Peck, Blake , Lillibridge, Jennifer
- Date: 2005
- Type: Text , Journal article
- Relation: Journal of child health care : for professionals working with children in the hospital and community Vol. 9, no. 1 (2005), p. 31-45
- Full Text: false
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- Description: This article reports findings from a larger qualitative study conducted to gain insight into the experience of fathers living with their chronically-ill children in rural Victoria, Australia. Data were collected via unstructured interviews with four fathers. The findings presented in this article explore the phenomena of normalization for fathers within the chronic illness experience. Fathers described normalizing the experience of living with their chronically-ill child as involving a combination of various coping strategies and behaviours including: (1) accepting the child's condition, (2) changing expectations, (3) focusing energies on a day-to-day basis, (4) minimizing knowledge-seeking behaviours, and (5) engaging in external distraction activities. Findings highlight the complex and unique normalization strategies these men utilized and contribute to knowledge and understanding of the complex nature of raising a chronically-ill child in rural Australia and provide a sound basis upon which to guide an ongoing and holistic assessment of fathers with chronically-ill children.
- Description: C1
- Description: 2003001057
Consumer participation in acute care settings : An Australian experience
- Authors: Wellard, Sally , Lillibridge, Jennifer , Beanland, Chris , Lewis, Michele
- Date: 2003
- Type: Text , Journal article
- Relation: International journal of nursing practice Vol. 9, no. 4 (2003), p. 255-260
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- Description: Consumer partnerships have been embraced as an important component of building high quality health care services. While nurses have the greatest contact with clients in hospital, little is known of their views about consumer participation or how they facilitate that participation at the bedside. Using focus group interviews and participant observation methods, this project explored nurses' approaches to working with consumers to support their participation in health care delivery. Findings indicate a sharp contrast between the ideas that nurses expressed and the actions observed in practice. It was clear from the interviews that nurses had adopted the rhetoric surrounding consumer participation, yet observational data revealed nursing practices that excluded active participation by consumers. Factors influencing nurses' facilitation of consumer participation were identified as the division of nursing labour in the setting, limited communication between nurses and patients and environmental constraints.
- Description: C1
- Description: 2003000409
Rural fathers' experiences of loss in day-to-day life with chronically ill children
- Authors: Peck, Blake , Lillibridge, Jennifer
- Date: 2003
- Type: Text , Journal article
- Relation: Australian Journal of Advanced Nursing Vol. 21, no. 1 (2003), p. 21-27
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- Reviewed:
- Description: The aim of this qualitative study was to gain insight into the experiences of fathers living with their chronically ill children in rural Australia. Data were collected via unstructured interviews with four fathers. Analysis followed the procedural steps for phenomenological data as outlined by Colaizzi (1978). Fathers described their experience of living with their chronically ill child as being filled with progressive losses for themselves and their child, including loss of: 1) pre-conceived expectations of future life; 2) a normal parenting relationship with their child; 3) normal partner relationship; and, 4) control of time and freedom. Findings contribute to knowledge and understanding of the complex nature of fathering a chronically ill child in rural Australia.
- Description: C1
- Description: 2003000405